Tuesday, February 16, 2016
Clean Eating
Friday, January 8, 2016
Dear Running,
Monday, October 19, 2015
The bubble of Alzheimer's
My sweet mama has Alzheimer's. She has had the disease for close to 10 years but, just recently it has become full blown. A year ago, we moved her into a resident care facility because it had just become too much for my 80 year old father to take care of her on a daily basis.
After recently spending time with my sweet mama, I began to get a feel for what it must be like to live with Alzheimer's. I think it must be somewhat like living in a bubble. Never really experiencing life in 3D but rather looking through a blurred lens and never quite being able to grasp your reality. I got the feeling she didn't think her home was hers, but that it was hauntingly similar to hers. She would look out the window and say, "Do you see that house across the street? It's just like the one across from my house." Or as we would drive around our old neighborhood she'd say "I know I should remember this but I just don't. None of this has anything to do with me." There were also many times she would say things that made no sense - a sort of rambling or unrelated series of words.
My mom has difficulty walking. She has to hold onto something at all times. She can't walk very far before she is out of breath. I began to think that it probably feels like walking through one of those "fun houses" at an amusement park. Only, it is so NOT fun. I imagine it feels a lot like walking across a river on narrow log. You take every step ever so gingerly for fear of falling into the water. I've experienced that feeling a few times and cannot imagine going through every moment of my life like that.
It breaks my heart to watch my sweet mama, a once vibrant, optimistic, sunny- dispositioned lady become a mere shadow of her former self.
Mama no longer knows me by name but, I have to believe that she knows that I am someone who loves her and someone that she loves back. The smile that breaks out across her face when she sees me, the way she runs her fingers gently across my hands as we visit (like she used to when I was little), the way she lights up when we sing old songs together. All of these things assure me that my mama is still here - the most important part of her is still here with us - her heart.
Saturday, April 25, 2015
How running saved my life
Not to mention my sanity, my health, my marriage, my mood, my faith, ...Uh, you get the idea.
The thing about running is that it affects your entire life, encompassing everything you do and everyone you come in contact with. You may not even realize it at the time but, running plays a key role in every decision you make. Wether that decision is to finish off the entire bottle of wine or change your perspective on a situation, running usually helps making that decision a little easier.
I have often joked that running is my therapy. But, truly that is no laughing matter. I cringe to think what I would have spent these past 5 years in psycho-analytical counseling sessions if it had not been for running. I can't even imagine how much weight I would have put on over the course of 5 years if it hadn't been for running. Or how high my already high cholesterol would be. And God knows, my almost 25 year marriage would not be what it is today if I did not have running in my life.
Even though my zest for running has slowed down a bit since I ran my first half marathon back in 2011, the benefits are still ever-present in my life. If I was to conduct a scientific study and chart my daily moods as well as my daily runs, I know that I would find a direct correlation between the days that I am on top of the world to the days that I was down in the dumps simply by wether I ran or not. Believe me, my co-workers can tell from my first "hello" wether I ran that morning or not. Recently, I saw a T-shirt that said "I run because pinching people is socially unacceptable". Case in point.
Running is the cherry on top of the sundae, it's the rainbow in the storm and it's the secret to my happiness. To stop running would be to stop breathing. Sure, the rate at which the race bibs go up on my garage wall may slow down, I will not stop lacin' it up and hittin' the road until they carry me off!
Saturday, February 28, 2015
Who you calling passive aggressive?
My latest project is overcoming Passive Aggressive behavior. Now, let's be honest, everybody has a little of this behavior unless maybe you are Mother Theresa or Pioneer Woman but...chances are if you are reading my blog, you have a little "PA" in you!
Lately, I've done a little research on the subject and I'm happy to report that I come by this trait honestly! What I've learned is that if you grew up in a traditional family where one parent was dominant and conflict was usually avoided, well then, you may have inherited a little more than the family rear end! (And for the record, yes I got that too!) Lucky Me!
Passive Aggressiveness is described as "sugar coated hostility" and boy, does that hit the nail on the head! Anytime you say something other than what you'd like to actually say, that is "PA". Anytime you respond with a sarcastic remark, you are being "PA". Anytime you post a status or photo with a slight intention to piss someone off...yep, you got it: "PA"! Give your hubby the silent treatment much? Yup! (They say the worst "F" word to come out of a woman's mouth is "Fine!") This little gem takes on all kinds of forms but any way you slice it, it's sour puss pie!
The real problem with sour puss pie is that the more you eat it, the more it harms you. The person you are mad at continues along their road in life without a care in the world, while you are seething with anger, frustration and resentment. Nothing will ever get better if you continue to eat from this "not so humble" pie, because the very thing that is causing you pain is the thing that you can't let go of. It's like continuing to down a fifth of whiskey and wondering why you have such a killer headache! You can't conquer your demons if you aren't willing to acknowledge them. Plain and simple. Face the demon. Free yourself from it's grasp. It really is that easy.
So, if it's that easy, why do we continue to do it? Because it's much easier to be angry than to face conflict. There are those who are so afraid of conflict that they will do just about anything to avoid it. Sounds crazy, huh?
The best thing you can do for yourself, for your health and your entire quality of life is to face your fears no matter what they are. One moment of discomfort is worth a thousand moments of bliss. Once you release whatever it is that is bothering you, you will suddenly feel a lightness, a joy that is indescribable. You gotta feel it to really appreciate it but, it is oh so sweet!
And the best way to avoid this thing in the future is to address problems as they arise. Nip it in the bud. Cut it short. Don't let it fester. No good comes from that.
In the end, you will suffer way less if you let it all out than if you hold it all in. And if you let it out little by little, even better! And remember:
Monday, February 16, 2015
50 things I want my kids to know
1. Treat others the way you want to be treated. Yep, the Golden Rule never goes out of style.
2. Celebrate the little things. Because in the end, that's what really matters.
3. Do what you love and the money will come. Don't ever take a job for the money alone because you will forever be a slave to it. Follow your heart and your job will never feel like work.
4. Work hard. "The way you do anything is the way you do everything" means that you set your own standard of work from the get go so, be sure to give it your all.
5. Eat caviar. Or "be fancy" once in awhile.
6. Go to confession once in awhile. Nothing feels better than a clean slate.
7. Climb a mountain. The air really is cleaner up there!
8. Listen to country music.
9. Learn how to shoot a gun.
10. Remember where you came from. See #8 & #9.
11. Learn from your mistakes. There's nothing wrong with making mistakes just try not to make the same ones over and over. And over.
12. Travel while you have the chance.
13. Stay in school. Duh.
14. Remember whatever you post on the internet, lives there forever!
15. Some good deeds go unpunished. Contrary to your father and mother's favorite saying, it really is worthwhile to do good.
16. Don't base your self worth on how many "likes" or "friends" you have.
17. Don't call in sick unless you are. #smalltownproblems
18. Remember that true character is who you are when nobody is watching. (aka, who you are when you're not on social media!)
19. People will like you more if they think you like them. This really does work! If there is someone you would like to like you more, simply show an interest in them. Careful what you wish for though, because you will have a friend for life.
20. Do crosswords (and not just the Monday ones!) Strive to constantly sharpen your mind - be it puzzles, podcasts or a paradigm shift!!
21. Don't forget to be awesome. Self explanatory, I hope.
22. Learn to run! Preferably before the age of 45!
23. Practice moderation. Preferably before your 50th bday!
24. Choose your mate wisely. Time only accentuates a person's true character. Think about that
25. Don't sleep your life away. Yes, it's true that the early bird gets the worm -- or atleast a better view of the sunrise!
26. If you get a chance to spend some time on a golf course, do it! The lessons you learn on a golf course will stay with you for life.
27. Take chances. Most of the things you will regret in this life, will be the things you DIDN'T do!
28. Always be kinder than you feel. You know the old adage "everyone is fighting a battle you know nothing about"...well, it's true!
29. Volunteer your time.
30. Excercise most days of the week.
31. Read your bible.
32. Practice what you preach. No one likes a hypocrite or a poser. Be who you say you are and stand your ground.
33. Give something up. Nothing feels better than giving something up that will allow you more freedom or time or money. Try it!
34. Don't keep track of wrongs. It will steal your joy.
35. Don't hang out with buzzkills - or 'hoodlums! 'Nuff said.
36. Help those who cannot repay you. Remember: "The best excersise for your heart is reaching down to help someone up!"
37. Spend time with the very young and the very old.
38. Take care of yourself. You only get one body, treat it well.
39. Stay up and watch the sunrise.
40. Splurge once in awhile. On a bottle of wine, a new pair of shoes or a once in a lifetime trip!
41. Learn how to fish. See #10.
42. Grow something.
43. Always use spell check! And just remember you can always hit the edit button once you have misspelled something.
44. Don't believe everything you read.
45. Have a favorite book.
46. Read a classic.
47. Listen to your gut.
48. Don't just pray when you need something. Just like you don't like it when a friend calls you only when he's in trouble, neither does God!
49. Everyone deserves to be validated. Even the jack asses!!!
50. You can always go home. Preferably just to visit. But, know that the door is always open and your bed will always be unmade.
Love,
Mom
Thursday, October 30, 2014
MS, PML and other fun acronyms
Over the years, I have tried all kinds of treatments and drugs to combat the devastating effects of this (lovely) disease! In the very beginning, I chose positive mental attitude (PMA) and prayer (otherwise known as OYK - or "on your knees"). That was followed up with a dose of better eating, lots of exercise and a bottle of bleach. It was great: I lost weight, I embraced my "inner blonde", I felt like a million bucks! I truly felt like MS had been a wake up call to live a better life! The life that God had intended me to live! Apparently, God thought I looked better as a blonde too!
A few years later, I started experiencing some numbness and balance issues. My doctor wanted me to consider Avonex, an intramuscular injection self-administered once a week. The only caveat was that they don't recommend getting pregnant while on this drug. My husband and I discussed it and decided that we should try for Baby #2. We'd give ourselves 6 months and if I wasn't pregnant by summer's end, we would close that door for good and I would begin my new treatment. Well, as luck would have it (just kidding, I know it was all God!) we were pregnant by Memorial Day! We were thrilled! AJ was going to have a little sister and our lil' party of three was about to become a foursome!
Marlee was born in January and just a few weeks after she was born, I began having exacerbations which would cause me to lose my balance more easily and my limbs to go numb. I remember being thankful that I was in a season of my life where I was almost always sitting on the couch (nursing) or pushing a stroller or grocery cart so, that I could sort of "fake" it if I needed to! But, I knew I needed to get started on my treatment ASAP! I knew that this meant I needed to wean my baby sooner than I had planned and get serious about fighting this fight. (Studies show that the sooner a person with MS starts treatment, the better their prognosis.) It was a tough decision but, time was not on my side and I had to act fast!
For several years, I was happy with the Avonex. Thankful, again that there was a miracle drug on the market and even more thankful for a husband that wasn't afraid to administer it! He will always be my hero for rising to that occasion. Our wedding vows had said "in sickness and in health" and clearly, he had meant every word.
But, like all good things, it came to an end...an MRI showed new lesions in my brain and my doctor wanted me to "amp it up" where my treatment was concerned. So, we switched to Rebif, another shot type drug but this time, instead of intramuscular, it was subcutaneous (which meant just below the skin) and was to be administered not once but, 3x a week. Oh joy!
Rebif worked for quite awhile, probably 5 or so years. But, in early 2011, I started experiencing dizziness and vertigo, rendering me unable to work and drive, limiting my daily functioning greatly. Again, my doctor ordered an MRI, got me started on multiple days of steroid infusions and started talking to me about this new drug called Tysabri. Tysabri was a once a month IV infusion that had seen great successes but, unfortunately had also seen unfortunate outcomes. Several people on the drug had died from a rare brain infection called PML or progressive multifocal leukoencephalopathy! Phew! Aren't you glad they just call it PML for short?! Anyhoo, the idea of a once a month IV (or as I like to call it "a mommy time out") sounded fabulous! No more shots! No real side effects to speak of, well other than the possibility of that "PM-whatever it was" so, I jumped on that train faster than a sneeze through a screen door!
So, I have been living happily ever after on Tysabri ever since!
A few weeks ago, my doctor ordered a few routine blood tests and another MRI. The MRI, thankfully, came back very good - no new lesions! Yay me! However, they also tested me for the antibody that causes the JC Virus, which is a major player in this whole PML Russian Roulette game! And, I tested positive.
So, back to that decision that I have to make. My doctor wants me to consider going off of Tysabri and try a new oral pill (taken twice daily) but, I'm not so keen about the side effects or the stuff that is in the pill. It is made from a chemical that has been used in furniture cleaner! What?
I, on the other hand, am not so ready to jump off the Tysabri Wagon just yet. I actually look forward to my monthly infusions as it is seriously one of the rare times in my busy life that I get to recline in a chair, cover up with a cozy blanket and either close my eyes or do a crossword, read or just chill for 2 hours! It's about the closest thing to a spa day that I get on a regular basis!
Besides that, here is what I do know:
I know that testing positive for the JC Virus puts me at a much higher risk for developing PML (1 in 500 I am told) but, I also know that there are other MS patients who continue to take this drug even after receiving a positive result. I also know that I feel 100% better since I've been taking Tysabri than I ever have while living with MS. I know that life is unpredictable in and of itself and I am willing to take my chances. I know that the God that I believe in already knows how my life on earth will end, and if PML is part of His plan, then so be it. I know for sure that I would rather live a more quality life right now than to have a life where I wasn't able to enjoy the things I enjoy doing. It's about living in the NOW. Yes, I am worried about the possibility of developing PML but, what scares me more is picturing my life without the strength in my legs to run a 5k or the vision to see things clearly and be able to do the work I love. Tysabri has given me a new lease on life and it would be awfully ironic if the very thing that saved me, ends up killing me. But, then again, God works in mysterious ways and who am I to second guess Him?
*on a side note, I love the book Jesus Calling so much that I have it programmed into my phone under the acronym JC so, every time I typed in those two letter that is what popped up! Kinda funny! I just hope it doesn't mean "Jesus is Calling me home!" Not just yet anyway!